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Tuesday, 05 December 2017 13:00

‘Knowledge is power:’ Gaucher initiative spotlights world of Jewish genetic testing - Available to increase success in Ukrainian Surrogacy

Our program of surrogacy in Ukraine, allows us to test for any type of disease that might be relevant from you background. In addition to testing embryos preimplantation, we can test donors for any unique concerns. Our exhaustive donor testing includes a large range of potential genetic and health issues, and sometimes there are unique concerns. We are hear to help. Enjoy the article.

Joseph Tessel doesn’t have any strong candidates—yet. But when he does meet the woman he wants to marry, he’s ready for her.

In part, that’s thanks to the fact that, on Oct. 17, this City College of New York student got himself tested on campus for a slew of Jewish genetic diseases.

“I heard about the screening from our Hillel and thought, why not?” says Tessel. “I’ve always been curious about what genetic conditions my family and I are predisposed to, anything that could affect my children someday. When I heard that here was a chance to take a pretty expensive test free of charge that would tell me that, I could think of absolutely no reason not to do it.”

The recent testing campaign and others like it, often on campuses with high Jewish populations, are run by JScreen, an organization whose mission is to screen for and raise awareness about Jewish and other genetic diseases. Among the 200-plus diseases JScreen tests for, the most common among Jews is Gaucher disease. In partnership with the National Gaucher Foundation, JScreen ramped up efforts to raise awareness about Gaucher during October, designating the month as Gaucher Disease Awareness Month.

Gaucher occurs when there is insufficient glucocerebrosidase, an enzyme that breaks down a fatty substance called glucocerebroside. When the body can’t break down the enzyme, Gaucher cells get backed up in the spleen, liver and bone marrow. This can result in low blood counts (anemia), easy bleeding and bruising, fatigue, an enlarged spleen or liver, and bone problems.

Though fairly rare in the general population (one in 40,000), Gaucher is far more common for Ashkenazi Jews—about one in 450, with one in 12 being a carrier; carriers do not show the disease’s symptoms.

Many people who have the disease are so minimally affected that they barely realize it, while early screening is reducing the damage that Gaucher inflicts. For those who are more symptomatic, a range of treatments is available when medically necessary.

“We now have five FDA-approved treatments for Gaucher and more are in development,” says Amy Blum, who heads the National Gaucher Foundation. “And that’s unusual for such a rare disease.”

Current research includes gene therapy, which is poised to enter clinical trials in the next year, as well as new forms of enzyme replacement therapy. An apparent link of Gaucher to late-onset Parkinson’s disease is being studied by the Michael J. Fox Foundation, among others.

Although the disease has a high prevalence in the Ashkenazi population, that applies mostly for type 1 Gaucher, which has far fewer devastating neurological symptoms than types 2 and 3, says Dr. Neal Weinreb, who teaches human genetics and hematology at the University of Miami’s Leonard M. Miller School of Medicine.

“One of the mysteries is you can have two siblings with the same mutation with very different cases,” Weinreb, the southeastern U.S. regional coordinator for the International Collaborative Gaucher Group. “That’s why they need to be evaluated and followed by people who know about Gaucher.”

To spread the word, JScreen and others reach out to rabbis and gynecologists to encourage engaged couples to be tested. Testing advocates say that even couples with mixed religious backgrounds need to be screened.

Many couples in which both partners are carriers choose to undergo pre-implantation genetic diagnosis, followed by in vitro fertilization (IVF), thereby assuring that their children will be Gaucher-free. Paige and Alan Guy of Ocean, N.J., who both tested positive for the Gaucher mutation, are now in the midst of the IVF process and, despite its complexities, are “grateful that the testing and the technology exist to allow us to have healthy children,” Paige says.

“Knowledge is power,” says JScreen Executive Director Karen Grinzaid. “Whether you’re single, engaged, newlyweds or already parents, having the knowledge allows everyone to take steps and make informed decisions to have healthy children and live healthy lives.”

“We got tested and turned out to be carriers for different things, but nothing overlapped,” says Yocheved Ferstenberg, who became a first-time parent four months ago along with her husband, Alex. “We know we are lucky.”

It’s too soon for Tessel, the City College student, to know the screening results, which typically take a month to arrive. But it’s not too soon for him to think carefully about the conversation that he plans to have with his future wife.

“To not talk about it would be not fair to either of us,” he says, “or to the children I hope we will have someday.”

For the best Ukrainian surragacy service, medical facilities and affordable surrogacy with strong legal protections for the intended parents from inception, contact us at Delivering Dreams. Learn if we can help you grow your family through Ukrainian Surrogacy. 908-386-3864 This email address is being protected from spambots. You need JavaScript enabled to view it..

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The communication with surrogate is easy and better than what we expected. The updates are provided as scheduled with occasional surprises
The support was great. It was easy on us that the coordination was done by the delivering dreams team while being completely transparent with us on the progress. The communication with the delivering dreams team was always fast, responsive, and easy.
E and K
Thank you kate. You have been great today and all the other days ❤ you are a great team. We are very satisfied and happy for your help.
We were confident before in our choice, but this experience has confirmed beyond any doubt that we choose the best agency.
I loved working with Susan and her team and highly recommend them to anyone considering her services. She's is great at every aspect of a process and knows how to handle delicate matters.
Diana Lyakhovetska
Susan truly understands the needs of parents using surrogacy, and offers comprehensive emotional support to parents as they experience the journey!
Christine Hughes Pontier
The team at Delivering Dreams is amazing! Their attention to detail and ability to put your mind at ease while growing your family is like none other. They handled everything for us, and I never once doubted they would help us accomplish our dreams.
Margaret Jones
I’ve known Susan for several years now, and I’ve always been impressed by her attention to her clients’ needs. I’ve known her to work ardently and diligently to solve whatever challenges, no matter how unique, that prevent her clients from completing their families. She is a problem-solver, and she earnestly believes in providing the best options and in making surrogacy opportunities realities: this is not merely a business for Susan. She will help customize the process for your needs and to ...
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Mary Woods
Susan has a keen sense of business and goes to the max to solve her clients’ problems. She is super knowledgeable on business, laws and how things work in surrogacy in general, and specifically on Ukrainian surrogacy. She is an advocate for transparency in a market that’s often opaque and full of hidden risks. I really enjoyed working with Susan. She really pays attention to detail and was always looking out for my best interest above all. Highly recommend!
Laurie Tham
Delivering Dreams goes above and beyond what other surrogacy agencies offer. After speaking with Susan, I see how they anticipate every part of the process, down to details that I had never even considered. I didn’t know what I didn’t know! Surrogacy can be really complicated and confusing. What an amazing sense of relief to have a company so dedicated to managing the WHOLE process and taking away as much of the stress as possible.
Kate Varness
I have gotten to know Susan through a group where we are members. I have found her to be a genuine and caring person. Her consideration for others and love of her work with Ukrainian surrogates and parents-to-be are evident in all her decision making. She is passionate about being a force for the greater good and helping where she can. I have been amazed at the way she is able to smoothly navigate the complicated maze of requirements in the surrogacy process. I am happy to give her my highest...
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Rose Anne Barbour Huck
Susan Kibler is kind.  She clearly loves those she works with and loves what she does.  Susan listens deeply and compassionately and can make you laugh all in the space of one conversation.  She is wonderful!  If you are feeling worried, she'll hear you.  If you have questions, she will find answers for you. If you need help, she does her very best to support you.  I feel so fortunate to have found her and imagine you will too.
Frances Russell
Susan has the ability to really connect on a personal level quickly.  I have found her easy to talk to and have been so grateful for her guidance.  She is one of those people who offers so much to her clients.  She sees the big picture and has a heart for the most intimate concerns.  She is highly skilled and able to manage what can certainly be challenging and uncomfortable experiences, making them feel easier.  She will take charge at the perfect times and guide you when you really need her...
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Susan Seare
The international surrogacy world is complicated. Susan Kibler knows its ins-and-outs. She knows the people and outfits you can trust and the ones to avoid. She insists on the best for her clients and handles the details so they don't have to worry about them. If you want to take the international surrogacy journey, you can trust Delivering Dreams International Surrogacy Agency to guide you on that path.
Nancy Linnerooth
My friend and I had a positive experience working with Susan. Susan is always super responsive and caring. She is very professional, helpful and reliable. My friend has soo much troubles trying having a baby for many years. My friend and her husband were about to give up their dream of having a baby. Susan Kersch Kibler found the way to help. She has unlimited energy, attentive to detail and super efficient. Great to work with!
Polina Clend
Susan is passionate about helping people become families. She is a trustworthy confidant to have on your side.
Kristen Ancker
Our experience with Delivering Dreams has been overwhelmingly positive. The team seems to be genuinely dedicated to helping us to realize our dream of having a child. The constant communication leading up to the trip and the numerous touch points made us feel comforted in what has been a very challenging and uncomfortable situation. We always had streamlined communication through the group chat and was frequently checked on during our stay.

Under Ukrainian law, surrogacy is a legal affordable option for traditionally married couples to have children using their own embryos, or with either an egg or sperm donor. There must be a medical reason you can’t carry a child. You are also able to participate if you have had 4 unsuccessful IVF attempts.


Under Ukrainian law, surrogacy is a legal affordable option for traditionally married couples to have children using their own embryos, or with either an egg or sperm donor. There must be a medical reason you can’t carry a child. You are also able to participate if you have had 4 unsuccessful IVF attempts.